Thanks for posting this OP, it actually means a lot to see someone talking about this.
I’ve been very lucky in that my pain has responded really well to medication, but I’ll never forget how absolutely awful it felt to be physically unable to play the games I love. I hope we continue to push for accessible features in games more and more, this is a great hobby and when you’re trapped at home it can have an enormous impact on your quality of life. Even just the social aspect of gaming is a huge benefit.
As someone who became mostly very suddenly disabled, and an avid gamer who has been forced to give up most games, including some of my favorites, I have to say that this is the best article I’ve read on the topic so far. Thank you for sharing. Hopefully people will actually read it and think about it.
And giving all of that up, or I guess we should say losing all of that, has dramatically deteriorated my ability to socialize. It’s just lose lose lose if you are a gamer who can no longer use your hands properly.
This really hit close to home for me. I was diagnosed with “hyper-mobility” when I was a teenager, but my doctor told me it was kinda a catch-all diagnosis. He told me it is degenerative and the only “treatment” is exercise to have tone muscle support my joints. Other provides have echoed this over the years.
I haven’t had a day free of pain since 2nd grade. It affects all my joints and I have frequent dislocations. I’ve been able to manage it with exercise for years and it’s provided me with an insane pain tolerance. But covid + RSV + pneumonia and secondary infections + long covid had me on my ass for so long, I neglected my joints and I’ve been in the worst flare up of my life.
I have to rehab slowly, but every time I exercise, it causes such bad systemic inflammation and cervicogenic migraines. It’s a vicious cycle that’s hard to break. Dry herb (Volcano) vaping medical marijuana and then gaming is literally the only time I feel an escape right now.
It helps me to disassociate from my pain and focus my attention on something so engrossing that my brain can’t spare attention to the ‘dulled’ perception of pain. It’s not like the pain is gone, but it’s changed and it’s a momentary relief. But even if only momentarily, finding some sort of respite is essential for your sanity.
I would still be here without gaming, but my quality of life would be a hell of a lot worse.
Yeah, I’ve got EDS, and gaming is one of the few things I can do and not risk being too much in pain (I do have to watch out for my fingers spraining and dislocating, though). Days when I can’t walk very well, I can still sit down and play a game.
EDS is what my last provider mentioned might be a better diagnosis. The joint symptoms fit, but I definitely don’t have the skin or blood cell issues that can present in EDS. Which I’m definitely grateful of.
Well, there are thirteen different types of EDS (most of them are REALLY rare, though), based on which connective tissue they impact the most. The most common are hypermobile, classical, and vascular. I have the hypermobile type, which mostly impacts joints. Classical EDS can have skin issues, and vascular is the type where it can cause your blood vessels to rip open inside of you. hEDS is the least likely to kill you, but most likely to negative impact your quality of life.
I never thought about it like that, but that explains why I played through Borderlands 2 over and over again while doing chemo. Everything hurt but I could still mow down some baddies.
It’s incredibly isolating when there is a game you are super keen to play, but your gaming group powers through as a group to end game, leaving you on your own to play catch-up.
They make promises to help, but magically they are always to busy even for a ten minute assist to help kill that boss it took them five people to take down.
A little empathy would have gone a long way, perhaps an invite to a group when they’ve rerolled their fourth character while I’m still levelling my first.
The people I’d been playing games with for the past few years stopped including me even on a token level. ‘We thought you were in guild/server/discord already.’ Never did get those invites.
You just got shit friends, there’s communities on here to find people to play games with, always someone on there looking for a gaming buddy, check some of them out, they all seem pretty cool.
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Thanks for posting this OP, it actually means a lot to see someone talking about this.
I’ve been very lucky in that my pain has responded really well to medication, but I’ll never forget how absolutely awful it felt to be physically unable to play the games I love. I hope we continue to push for accessible features in games more and more, this is a great hobby and when you’re trapped at home it can have an enormous impact on your quality of life. Even just the social aspect of gaming is a huge benefit.
As someone who became mostly very suddenly disabled, and an avid gamer who has been forced to give up most games, including some of my favorites, I have to say that this is the best article I’ve read on the topic so far. Thank you for sharing. Hopefully people will actually read it and think about it.
And giving all of that up, or I guess we should say losing all of that, has dramatically deteriorated my ability to socialize. It’s just lose lose lose if you are a gamer who can no longer use your hands properly.
This really hit close to home for me. I was diagnosed with “hyper-mobility” when I was a teenager, but my doctor told me it was kinda a catch-all diagnosis. He told me it is degenerative and the only “treatment” is exercise to have tone muscle support my joints. Other provides have echoed this over the years.
I haven’t had a day free of pain since 2nd grade. It affects all my joints and I have frequent dislocations. I’ve been able to manage it with exercise for years and it’s provided me with an insane pain tolerance. But covid + RSV + pneumonia and secondary infections + long covid had me on my ass for so long, I neglected my joints and I’ve been in the worst flare up of my life.
I have to rehab slowly, but every time I exercise, it causes such bad systemic inflammation and cervicogenic migraines. It’s a vicious cycle that’s hard to break. Dry herb (Volcano) vaping medical marijuana and then gaming is literally the only time I feel an escape right now.
It helps me to disassociate from my pain and focus my attention on something so engrossing that my brain can’t spare attention to the ‘dulled’ perception of pain. It’s not like the pain is gone, but it’s changed and it’s a momentary relief. But even if only momentarily, finding some sort of respite is essential for your sanity.
I would still be here without gaming, but my quality of life would be a hell of a lot worse.
Yeah, I’ve got EDS, and gaming is one of the few things I can do and not risk being too much in pain (I do have to watch out for my fingers spraining and dislocating, though). Days when I can’t walk very well, I can still sit down and play a game.
EDS is what my last provider mentioned might be a better diagnosis. The joint symptoms fit, but I definitely don’t have the skin or blood cell issues that can present in EDS. Which I’m definitely grateful of.
Well, there are thirteen different types of EDS (most of them are REALLY rare, though), based on which connective tissue they impact the most. The most common are hypermobile, classical, and vascular. I have the hypermobile type, which mostly impacts joints. Classical EDS can have skin issues, and vascular is the type where it can cause your blood vessels to rip open inside of you. hEDS is the least likely to kill you, but most likely to negative impact your quality of life.
https://www.nhs.uk/conditions/ehlers-danlos-syndromes/
Appreciate the info. Definitely fits.
I never thought about it like that, but that explains why I played through Borderlands 2 over and over again while doing chemo. Everything hurt but I could still mow down some baddies.
It’s incredibly isolating when there is a game you are super keen to play, but your gaming group powers through as a group to end game, leaving you on your own to play catch-up.
They make promises to help, but magically they are always to busy even for a ten minute assist to help kill that boss it took them five people to take down.
A little empathy would have gone a long way, perhaps an invite to a group when they’ve rerolled their fourth character while I’m still levelling my first.
The people I’d been playing games with for the past few years stopped including me even on a token level. ‘We thought you were in guild/server/discord already.’ Never did get those invites.
You just got shit friends, there’s communities on here to find people to play games with, always someone on there looking for a gaming buddy, check some of them out, they all seem pretty cool.
No argument there. Just have to find a new place to game from.
Hey I also have cronic pain. What games do you play? Maybe we can play em together
Current list is Path of Exile, Sea of Thieves, Satisfactory, and Warframe. Aust timezone.
Id play satisfactory with you but im not sure how well Australian time matches up with EST
Not easily. :(
I just want to say fuck nerve problems and tinnitus. Most of all, fuck having these legitimate problems and not having any useful diagnosis.